http://rarediseases.about.com/ Get the latest headlines from the About.com Rare Diseases GuideSite. http://clk.about.com/?zi=1/1hi http://www.about.com/ 118 20 en-us 2009-06-30T08:08:31Z Tue, 30 Jun 2009 08:08:31 +0000 hourly 1 2000-01-01T12:00+00:00 http://rarediseases.about.com/b/2009/07/01/23-people-hospitalized-from-e-coli-outbreak-in-beef.htm The Centers for Disease Control and Prevention (CDC) is reporting that 23 people in 9 states have been hospitalized due to eating bad ground beef. The beef, from the JBS... http://rarediseases.about.com/b/2009/07/01/23-people-hospitalized-from-e-coli-outbreak-in-beef.htm Wed, 01 Jul 2009 20:52:38 +0000 2009-07-01T20:52:38Z http://rarediseases.about.com/b/2009/06/30/major-league-baseball-to-fight-4als-awareness-this-july-4th.htm New York Yankee player Lou Gehrig gave his famous farewell speech to baseball fans in a ceremony between games of a doubleheader at Yankee Stadium nearly 70 years ago. He... http://rarediseases.about.com/b/2009/06/30/major-league-baseball-to-fight-4als-awareness-this-july-4th.htm Tue, 30 Jun 2009 08:08:31 +0000 2009-06-30T08:08:31Z http://rarediseases.about.com/b/2009/06/28/waiting-for-a-diagnosis.htm If you’re facing a possible life-changing diagnosis -- and most rare diseases fall into this category -- waiting for a diagnosis can be very stressful. Waiting for test results, waiting... http://rarediseases.about.com/b/2009/06/28/waiting-for-a-diagnosis.htm Sun, 28 Jun 2009 08:22:08 +0000 2009-06-28T08:22:08Z http://rarediseases.about.com/b/2009/06/23/scott-pelley-of-cbs-60-minutes-voices-pku-public-service-announcement.htm Phenylketonuria (PKU) is an inherited metabolic disorder. Scott Pelley of CBS' 60 Minutes has added his voice to a public service announcement about PKU for the National PKU Alliance. You... http://rarediseases.about.com/b/2009/06/23/scott-pelley-of-cbs-60-minutes-voices-pku-public-service-announcement.htm Tue, 23 Jun 2009 08:06:45 +0000 2009-06-23T08:06:45Z http://rarediseases.about.com/b/2009/06/21/klippel-trenaunay-syndromes.htm Three similar blood vessel disorders are called Klippel-Trenaunay syndrome, Klippel-Trenaunay-Weber syndrome, and Sturge-Weber syndrome. All three are present at birth and cause malformations of the blood vessels and changes in... http://rarediseases.about.com/b/2009/06/21/klippel-trenaunay-syndromes.htm Sun, 21 Jun 2009 09:17:16 +0000 2009-06-21T09:17:16Z http://rarediseases.about.com/b/2009/06/17/genzyme-temporarily-halts-production-of-two-rare-disease-drugs.htm Genzyme Corporation announced on June 16 that it has decided to temporarily halt production at its Allston Landing manufacturing facility in Allston, Massachusetts. The company stated it detected a virus... http://rarediseases.about.com/b/2009/06/17/genzyme-temporarily-halts-production-of-two-rare-disease-drugs.htm Wed, 17 Jun 2009 18:05:18 +0000 2009-06-17T18:05:18Z http://rarediseases.about.com/b/2009/06/16/congressional-bill-proposes-national-undiagnosed-diseases-registry.htm On May 21, 2009, Rep. John Carter (R-TX) introduced a bill, H.R.2538, into the U.S. House of Representatives. Called the Charles August 'CAL' Long Undiagnosed Diseases Registry Act of 2009,... http://rarediseases.about.com/b/2009/06/16/congressional-bill-proposes-national-undiagnosed-diseases-registry.htm Tue, 16 Jun 2009 17:29:26 +0000 2009-06-16T17:29:26Z http://rarediseases.about.com/b/2009/06/14/june-is-aps-awareness-month.htm Antiphospholipid syndrome (APS), also known as "sticky blood," is an autoimmune disorder in which the body makes antibodies to its own blood proteins. Along with the antibodies, the body begins... http://rarediseases.about.com/b/2009/06/14/june-is-aps-awareness-month.htm Sun, 14 Jun 2009 08:04:40 +0000 2009-06-14T08:04:40Z http://rarediseases.about.com/b/2009/06/13/6th-annual-lemonade-days-for-childhood-cancer.htm Alex's Lemonade Stand Foundation is hosting its 6th Annual Lemonade Days this weekend, June 12-14, to raise money to fight childhood cancer. The Foundation states, "During Lemonade Days, dedicated volunteers... http://rarediseases.about.com/b/2009/06/13/6th-annual-lemonade-days-for-childhood-cancer.htm Sat, 13 Jun 2009 20:04:38 +0000 2009-06-13T20:04:38Z http://rarediseases.about.com/b/2009/06/09/ryan-dempsters-daughter-has-digeorge-syndrome.htm FOXSports.com reports that Chicago Cubs pitching ace Ryan Dempster's infant daughter Riley, born April 1, has DiGeorge syndrome. In DiGeorge syndrome, an infant's face, neck, and chest don’t develop properly... http://rarediseases.about.com/b/2009/06/09/ryan-dempsters-daughter-has-digeorge-syndrome.htm Tue, 09 Jun 2009 11:19:58 +0000 2009-06-09T11:19:58Z