http://rarediseases.about.com/ Get the latest headlines from the About.com Rare Diseases GuideSite. http://z.about.com/f/lg/s10.gif http://www.about.com/ 118 20 en-us 2008-10-05T12:35:44Z Sun, 05 Oct 2008 12:35:44 +0000 hourly 1 2000-01-01T12:00+00:00 http://rarediseases.about.com/b/2008/10/07/nord-wants-your-social-security-administration-stories.htm The National Organization for Rare Disorders (NORD) reports that the Social Security Administration (SSA) is seeking input from both physicians and patients on rare diseases. The SSA conducted hearings last... http://rarediseases.about.com/b/2008/10/07/nord-wants-your-social-security-administration-stories.htm Tue, 07 Oct 2008 08:28:59 +0000 2008-10-07T08:28:59Z http://rarediseases.about.com/b/2008/10/05/primary-intestinal-lymphangiectasia.htm Primary intestinal lymphangiectasia (PIL), also called Waldmann's disease, is a disorder that causes protein to be lost from the intestines. Diagnosis of PIL is often made in childhood, usually before... http://rarediseases.about.com/b/2008/10/05/primary-intestinal-lymphangiectasia.htm Sun, 05 Oct 2008 12:35:44 +0000 2008-10-05T12:35:44Z http://rarediseases.about.com/b/2008/10/03/sarcoidosis-awareness-day-october-4-2008.htm October 4, 2008, is Sarcoidosis Awareness Day. Comedian Bernie Mac's recent death brought some national attention to sarcoidosis, a disease that can occur anywhere in the body but mainly affects... http://rarediseases.about.com/b/2008/10/03/sarcoidosis-awareness-day-october-4-2008.htm Fri, 03 Oct 2008 11:52:03 +0000 2008-10-03T11:52:03Z http://rarediseases.about.com/b/2008/09/30/gene-may-be-linked-to-narcolepsy.htm In narcolepsy, individuals have trouble with excessive daytime sleepiness. They may even fall asleep suddenly while doing something. Researchers in Japan looked at the genes of 222 Japanese people with... http://rarediseases.about.com/b/2008/09/30/gene-may-be-linked-to-narcolepsy.htm Tue, 30 Sep 2008 12:43:04 +0000 2008-09-30T12:43:04Z http://rarediseases.about.com/b/2008/09/28/histidinemia-2.htm Histidinemia is an inherited metabolic disorder that affects both males and females. In histidinemia there is a deficiency of the enzyme histidase, which is necessary for the breakdown of the... http://rarediseases.about.com/b/2008/09/28/histidinemia-2.htm Sun, 28 Sep 2008 08:30:12 +0000 2008-09-28T08:30:12Z http://rarediseases.about.com/b/2008/09/21/leighs-disease-2.htm Leigh's disease is an inherited metabolic disorder. Symptoms of the damage it does to the central nervous system begin to show between 3 months to 2 years of age. In... http://rarediseases.about.com/b/2008/09/21/leighs-disease-2.htm Sun, 21 Sep 2008 11:25:48 +0000 2008-09-21T11:25:48Z http://rarediseases.about.com/b/2008/09/17/us-fda-approves-gamunex-for-treating-cidp.htm On September 12, 2008, the U.S. Food and Drug Administration (FDA) announced that it has approved Gamunex (immune globulin IV) for the treatment of chronic inflammatory demyelinating polyneuropathy (CIDP). CIDP... http://rarediseases.about.com/b/2008/09/17/us-fda-approves-gamunex-for-treating-cidp.htm Wed, 17 Sep 2008 08:20:43 +0000 2008-09-17T08:20:43Z http://rarediseases.about.com/b/2008/09/14/why-join-a-rare-disease-support-group.htm If you don't already belong to a rare disease support group, you might think about joining one. It can help you feel less alone, and you can share stories with... http://rarediseases.about.com/b/2008/09/14/why-join-a-rare-disease-support-group.htm Sun, 14 Sep 2008 08:15:10 +0000 2008-09-14T08:15:10Z http://rarediseases.about.com/b/2008/09/11/children-with-chronic-illness-feel-left-out-of-treatment-decisions.htm CBC News reports that children with chronic illnesses told a researcher for a Calgary pediatric study that they want to play a bigger role in their own treatment. Andrea Pritchard,... http://rarediseases.about.com/b/2008/09/11/children-with-chronic-illness-feel-left-out-of-treatment-decisions.htm Thu, 11 Sep 2008 13:34:04 +0000 2008-09-11T13:34:04Z http://rarediseases.about.com/b/2008/09/07/wilsons-disease-2.htm The body needs small amounts of copper. If we take in too much copper in our food, normally the body gets rid of the excess. In Wilson's disease, this doesn't... http://rarediseases.about.com/b/2008/09/07/wilsons-disease-2.htm Sun, 07 Sep 2008 10:05:21 +0000 2008-09-07T10:05:21Z